Articolo apparso sul Gazzettino di martedì 8 Giugno 2010
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Poco aiuto dalle Ulss ai malati di Sla
LA DENUNCIA
(P.A.) Anche Badia dà il suo contributo alla Giornata nazionale della lotta contro la Sla (Sclerosi laterale amiotrofica). Rita Crivellari Spiazzi "madre di una malata di Sla" dice: «Gli ammalati, gradually, while maintaining good cognitive abilities, they lose more than the movement, even the word. They need loving care and assistance, continuous, constant, daily, day and night. This implies, in addition to untold suffering for the patient and the family, a considerable effort both physically and time, both economically. " On this aspect
Rita Crivellari Spiazzi states: "The NHS through the Health Authority offers help 18 very limited and inadequate. Is not considered and properly assessed because these patients would cost the community if, instead of being cared for at home, were admitted to public hospitals. It would be necessary therefore opens up a real public debate about what we are actually doing and what you are investing for continuity of care home about the debilitating disease, wondering whether that is also increasingly evident by the lack of a qualified home care, to support economic and psychological support to families, health and social services organized by the lack of involvement of public opinion and its solidarity, which ripen those conditions of suffering and neglect for which some patients ask to die. "
Concludes Rita Crivellari Spiazzi: "To help and support research projects and assistance to people with ALS, you can send a contribution to the national association aisle / non-profit organization to c / c postale n ° 17464280 made out aisle / non-profit organization or to the postal giro account No. 72883317 Padova ALS Association.
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